Research Studies & Data Collection
TCOYD Research Registry
***Please note you must be 18 years or older to participate*** Dr. Edelman and the staff at Taking Control of Your Diabetes (TCOYD) are collaborating with the Behavioral Diabetes Institute (BDI) to conduct a series of research studies over the next few years. These studies are designed to lead to a better understanding of problems experienced by people with diabetes and their families. TCOYD and BDI want to know if you wish to learn about these new research studies when they are ready to begin. At that time, you can decide if you wish to participate in them. You have no obligation to actually participate in any study. Click here to learn more and/or register.
TrialNet Pathway to Prevention Study
The Natural History Study of the Development of Type 1 Diabetes will study people at increased risk for type 1 diabetes to learn more about how type 1 diabetes occurs. TrialNet is screening close blood relatives of people with type 1 diabetes because relatives of people with type 1 diabetes have a 10 to 15 times greater risk for developing the disease than people with no family history. Click here to learn more and find out if you or someone you know is eligible.
- DiaTribe: Online Sign-Up for TrialNet
- DiaTribe: Interview with Dr. Desmond Schatz, who is leading TrialNet
- DiaTribe : Age Limits on Trials in Type 1 Diabetes
- A Sweet Life: Type 1 Diabetes TrialNet Prevention Study
- A Sweet Life: TrialNet: Should we do it?
- A Sweet Life: TrialNet Teams Up With Type 1
- Diabetes Mine: TrialNet Update: Oral Prevention and How You Can Help
The T1D Exchange
T1 REDEEM (Reducing Distress and Enhancing Effective Management)
Living with type 1 diabetes (T1D) can be tough. Many people go through times when they experience considerable distress about the day-to-day demands and frustrations of T1D, sometimes people find it really hard to fit diabetes into their lives. And this distress can affect diabetes management and glycemic control. To address this problem, the BDI is partnering with the Behavioral Diabetes Research Group at the University of California at San Francisco in an NIH-supported project to find better ways to reduce distress and enhance management for adults with type 1 diabetes. The project is called T1 REDEEM (Reducing Distress and Enhancing Effective Management). Interested in learning more or participating? Click here.
Here are links to some of the institutions doing cure research, and what they are up to – exciting stuff!
- JDRF Cure Research
- Joslin Diabetes Center Cure Research
- Diabetes Research Institute
- Juvenile Diabetes Cure Alliance
Artificial Pancreas Research
While an artificial pancreas is not a cure, it’s still pretty cool. Check out some of the prototypes leading the way in artificial pancreas research.
- Diabetes Research Institute: BioHub
- JDRF Artificial Pancreas Research
- Boston University/Massachusetts General Hospital Artificial Pancreas